Hazy, I really want to know what you are actually going through...not really clear in my head right now.
If you don't mind, will you please explain to me?
Lol Don't worry the doctors don't seem to know either!
Basically I've been suffering for over two and a half years from chronic upper back pain, mainly in my shoulders that causes referred pain down my right arm (although in last 5 months it's been affecting my left as well)
So I'm in constant pain despite massive amounts of medication. I've seen Orthopedics, Neurology, Physiotherapy. I've attended pain management courses and had x-rays and an MRI done. Nothing has come up or helped. BAsically there is nothing 'physically' wrong with my back or nerves that's causing the pain. For some reason my nerves have got stuck 'on' sending pain signals and can't stop.
The plan is to give me a nerve block called a stellate ganglion block, sometime in the new year which should force the nerves 'off' and give the nerves a break, theoretically breaking the pain cycle and we can then start to re-train the nerves.
The problem is that the pain is becoming less predictable and I've passed out due to a rapid increase in the pain a few times in the last few weeks. I'm getting less warning that this might happen and it doesn't happen every time the pain increases. Also while doing things (anything from aqua fit to sitting too long) I get sorer anyway so it's not like there's a nice clear cut list of things for me to avoid doing to prevent this.
Massages and taking diazepam when I feel worse can help but that's not really a good solution and I don't always have time for it to take affect before the pain reaches blacking out point.
As the doctor in A&E on Monday said, it's a 'complex condition'
But surviving, went back to my aqua fit class this morning and kept it easy and low resistance (while feeling the eyes of every lifeguard on me!) and I managed the class and haven't blacked out today